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Save the Date: Multistakeholder-event on cardiomyopathies on February 21

Cardiomyopathies, a group of diseases affecting the heart muscle, are often neglected despite the significant burden they pose on individuals and society in Belgium and other countries. Unlike most cardiovascular diseases, cardiomyopathies have a strong hereditary component affecting mostly young and active people. However, through enhanced awareness, detection, and healthcare provision, the impact and prevalence of those diseases could be reduced.

Cardiomyopathies Matter, an initiative funded by Bristol Myers Squibb, aims to address this issue by raising awareness and ensuring they receive positive policy attention from healthcare system decision-makers and influencers. It is essential to consider that the needs and necessary evolutions in Belgium may vary and require a tailored approach considering, among others, the differences in healthcare policies.

During an event on February 21, experts in the field Prof. Dr. Bondue (Hôpital Universitaire de Bruxelles, Hôpital Erasme), Prof. Dr. Van Craenenbroeck (Universitair Ziekenhuis Antwerpen) and Prof. Dr. Janssens (Universitair Ziekenhuis Leuven), will discuss with members of the Federal Parliament Robby De Caluwé (Open Vld) and Nathalie Muylle (cd&v) and patient representatives how we can tackle these challenges and provide policy recommendations to address these challenges and improve patient outcomes in Belgium.

The e-mail with a registration link will be send out in the beginning of January.

Practicalities:

  • Venue: De Warande (Brussels)
  • Doors open at 9 and the event starts at 9.30
  • Testimonials by Professor Janssens and a patient representative
  • Panel discussion with Professor Antoine Bondue, Robby De Caluwé (Open Vld), Nathalie Muylle (cd&v) and a patient representative
  • Closing remarks by Professor Emeline Van Craenenbroeck
  • Lunch/reception between 12-13h

We are looking forward to meet you on February 21 and we already like to wish you a happy new year!

The Cardiomyopathies Matter Team