Cardiomyopathies Matter
The Cardiomyopathies Matter Roadmap aims to raise awareness about cardiomyopathies and to ensure they receive the policy attention they warrant from healthcare system decision-makers and influencers at the EU and national level
Latest news
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Shedding Light on Cardiomyopathies in the Netherlands: The Impact Map Now Available
Cardiomyopathies remain a serious yet underrecognized area within cardiology in the Netherlands. Despite growing knowledge of their genetic and pathophysiological mechanisms, timely identification in clinical practice continues to pose a significant challenge. Zorg voor de Hartspier — a collaborative initiative of healthcare professionals, patient organizations, and professional associations — aims to bridge this gap. To…
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OECD publishes report on cardiovascular health in the EU
On 15 December, the Organisation for Economic Co-operation and Development (OECD) published its report on “The State of Cardiovascular Health in the European Union”. The report shows that cardiovascular disease (CVD) remains the leading cause of death and disability across the EU, accounting for one in three deaths and costing an estimated €282 billion annually.…
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European Commission publishes Cardiovascular Health Plan: “Safe Hearts Europe Plan”
On 16 December, the European Commission published its long-awaited Cardiovascular Health Plan, the “Safe Hearts Europe Plan”. The Plan is a comprehensive EU strategy to tackle the growing burden of cardiovascular diseases. The plan is structured around three pillars: (1) Prevention, (2) Early Detection and Screening, and (3) Treatment, Care and Rehabilitation. “Safe Hearts Europe”…
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CMatter Steering Group members author article on early diagnosis of Cardiomyopathies
“Unseen, Underdiagnosed, Undertreated” Cardiomyopathies Matter participants, Rogier Veltrop, Tootie Bueser, and Patricia Tiramani, have published, on behalf of Cardiomyopathies Matter, an op-ed in the Parliament Magazine, calling for urgent action to improve early diagnosis and better care for cardiomyopathies in the framework of the upcoming EU Cardiovascular Health Plan. Cardiomyopathies are a serious public health…
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Members of the European Parliament ask the Commission about cardiomyopathies
Affecting ~1 in 330 people in Europe, cardiomyopathies can strike at any age, often leading to severe complications, hospitalisation, and even heart transplants. The human and economic toll is significant – yet policy attention remains minimal. To draw attention to this situation, Members of the European Parliament (MEPs) Nicolás González Casares, Elena Nevado del Campo,…
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Cardiomyopathies Matter publishes policy debate on early diagnosis of cardiomyopathy with MEP Sokol
This policy debate seeks to inform the public conversation on the importance of promoting early diagnosis of cardiomyopathies. To that end, Cardiomyopathies Matter brought together experts and patients with a Member of the European Parliament to reflect on actions needed to improve patients’ pathways, foster early diagnosis of cardiomyopathy, reflect on best practices, and ensure…
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Cardiomyopathies Matter Belgium launches podcasts: Insights from a cardiologist and a patient
Listen to the podcasts: A patient’s testimony by Sophie Charlier (in French): Cardiomyopathies explained by Prof. Van Craenenbroeck (in Dutch): Cardiomyopathies are a group of diseases that affect the heart and can interfere with the heart’s ability to pump blood effectively. These conditions are often hereditary and may go undetected for years, even though they…
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European Heart Journal publishes CMatter article “Family Matters: Health Policies to Tackle Cardiomyopathies Across Europe”
On 16 November, the European Heart Journal published the article “Family Matters: Health Policies to Tackle Cardiomyopathies Across Europe,” authored by Iacopo Olivotto on behalf of the Cardiomyopathies Matter Initiative. The article emphasizes the urgent need for stronger health policies to address cardiomyopathies, focusing on the importance of standardized care, genetic testing, and multidisciplinary approaches…